Wednesday, April 29, 2009
Keep praying
Well, after my amazing news this morning, the rest of the day was awful!! I got a horrible headache that would not seem to go away, then this afternoon, I got a slight fever (which I still have) so they had to do cultures again. And since my headache wouldn't go away, they did a CAT scan. I tell you what......I am so ready to go to sleep and tomorrow be a much better day! So please continue to keep me in your prayers. Pray God continues to heal me by taking the headache away, for the scan to come back normal as well as the cultures. God is good and I know He is still healing me. I am still SO THANKFUL for this morning's news. Bri is my marrow match!! Praise God!! There's no date yet for the transplant yet as my counts are still super low and they have to come up so I'm healthy again first. Then they'll do a biopsy to check for remission and then they'll schedule the transplant. So keep those prayers coming!!! God is good and is continually working and healing me!!
Rejoice in the Lord for He is GOOD!!!!
I got the most wonderful news this morning from my doctor........BRI IS MY MARROW MATCH!!!!!!!!!! PTL PTL PTL PTL PTL HALLELUJAH!!!!!!!!!! That is the BEST news I have heard in months!!!! I am so happy....words can not describe how happy I am!!! I am going to be cured from this disease!!!! Praise God!!! Bless you my sister....you are the greatest sister EVER and I love you so much for doing this for me!!!! I owe you my life!!! It'll still be a month or more probably before we do the transplant. I still have to wait until my counts are up before I can go home. I'll then go home for a week or two then come back for a biospy to be sure I am in remission. Which we know God will keep me in remission!!! Then we will do marrow transplant. I'm not sure how long Bri will be in the hospital but I know I'll be here for 3-4 weeks and then have to stay with a friend here in Columbus for a week or two to continue to get checked to make sure everything is still ok. But, I know God is healing me and will continue to heal me. He is such an AWESOME God and I can not thank Him or your all enough for your continued prayers!!! THEY ARE WORKING!!!! Rejoice in the Lord always and again I say REJOICE!!!!!!
Still no results from the ultrasound yet but I'm sure it's nothing. Dr said it's probably just from some of the medications I'm on. He said he should know by this afternoon.
Thank you again for all you prayers!!! Keep them coming because God is working so wonderfully!!!!!!!
Still no results from the ultrasound yet but I'm sure it's nothing. Dr said it's probably just from some of the medications I'm on. He said he should know by this afternoon.
Thank you again for all you prayers!!! Keep them coming because God is working so wonderfully!!!!!!!
Tuesday, April 28, 2009
Bad day
Well, today has been a bad day. My counts were pretty low. Low enough to need both platelets and a blood trasfusion. So, they gave me my premeds for the platelets (I've never had a reaction) and started them. They had just finished when I started itching. And it was getting worse. They gave me more benadryl and hydrocortisone. They also took some blood cultures because the Dr said I just looked awful. I felt awful!!! I slept for a couple of hours and the hives are finally gone. They going to try to give me the blood this evening so pray I don't react to that!!! Also, my liver is slightly inflamed so they're going an ultrasound on that at 5:30. I'm not allowed to eat or drink til after and I haven't had anything since like 11. I'm starving!!!! So, hopefully it's nothing and it's just from the medication. I should know tonight so I'll try to blog agai with results if I have them. So-a very sucky day to say the least!!! I'm ready for some good days and to get out of here pronto!!
Monday, April 27, 2009
rough weekend
I have had a bit of a rough weekend, which is why I haven't posted in a few days. It all started Friday night. I thought it was going to be a good weekend. My sister, Trina came up with Kylee, a friend of her's from church. We went outside and enjoyed the beautiful weather for a couple hours. It was awesome. I started getting hungry but was expecting some other visitors who were bringing me supper. It got to be about 6:30, and I just couldn't wait any longer so Trina went downstairs and got me Wendy's. I ate and thought I would feel better but it was the complete opposite. I felt terrible!! I thought I was going to be sick. I called the nurse for some drugs and just wanted to sleep. I felt bad as Trina and Kylee had to witness me not feeling well and left. Thankfully, it was a nice visit before I felt ill. Anyways, the nurse came in and also took me off my PCA pump (the pump that was giving me pain meds for my back). They decided that since I was pushing the button as much, I could just use pills or IV if needed. Well, if you remember back to when I was in Lutheran when I first got diagnosed, they took me off the PCA pump that had morphine in it. I got this weird, heeby jeeby feeling and had like these seizures. It was very strange. They had to give me small doses of morphine to get it stop. So-the exact same thing happened with these pain meds. It is the worst feeling ever. So, Friday night was not a good night. I barely slept so come Saturday, after they kept giving me small doses of pain meds, I slept pretty much all day. I didn't wake up til 3:30. And even then, I didn't want to get out of bed. I was miserable. Yesterday wasn't too bad. I woke up to a text from my sister. She had went to one of our friends bachlorette party's, which I was supposed to go to as well. It was a picture message of her and the 2 girls we grew up with. The text said "Something's missing....oh yeah YOU". And that did it. I started balling. I miss my sister and my nephews. I hate that it's to far for them to come visit. I'm sick of being here when I feel absolutely fine. But, my counts are still way to low for me to go anywhere. The doctor actually came in when I was crying, which was just great. I told him I just wanted to go home but of course he said I'm doing great and by this time next week, my counts should be looking pretty good. So, I'm going to be here at least another week, maybe more. BLAH!!! Anyways, my dad came up with his friend Earl from church. I wanted to get outside, so we went out and sat in the beautiful weather again. Only I started feeling light headed and nauseous. So, we came back inside so I could get some proper medicine. I didn't feel quite as bad as the day before, but still pretty crappy. They left about 6. I rested a bit and watched TV as I waited for my mom to come. She didn't get here til around 8:30. She stayed the night and spent today with me, which was nice. I think I really needed it. We sat outside for a good 2 hours and walked quite a bit. More than I've walked in awhile, thus making my legs and lower back hurt. I hate that she has to leave but she has to get to work tomorrow, which I understand. Next weekend, she said she's going to try to come up Saturday and stay til Monday. So, the weekend was a bit of a rollercoaster. Today was probably the best day, even though I still haven't felt the greatest. So, pray that I start to feel better. Because I am sick of feeling this way that's for sure!!! But, I know God has a plan and He is still healing me. This potent chemo is still working to make sure all the canser is dead and gone for good so we can do the transplant. Still no word if Bri is a match. It'll take a couple weeks but I KNOW she's my match. So, keep praying. God is still working. Come visit. I'm getting very bored. Text or call though before you come. Please don't just show up lol. I need time to prepare!! ;) Well, I'm signing off. I do not feel well and have a headache to top it off. Thank you all for your continued thoughts and prayers!! I know God is with me daily, helping me through this.
Thursday, April 23, 2009
Still crashing
My counts today were even lower than yesterday, which surpised me. The doctor didn't seem to be surprised though, which is good. I had to get platelets today. And if my counts don't come up, there's a good chance I could have to get blood tomorrow so we'll see. Hopefully, my counts will start coming up though. I've been getting the Neupogen shot every day, which is supposed to help in raising your counts. And, when my counts come up and level out, I can come home for a bit! And man do I want to come home!!! I miss my own bed!! I've been here at Columbus for almost 3 weeks. I was only home 2 days from being at Lutheran for a week before I came here. So, I've been in the hospital for like a month!!! Crazy!! Stupid canser. I need this transplant so bad to cure it.....to get rid of it for good. I want to get back to my life, my job. I miss it! I miss my students, my own place (which is a new apartment that I have yet to come home too). I'm sorry....I shouldn't be complaining. I know God is healing me. He has a plan and I don't know what that plan is but I know He is healing me. Bri is my marrow match and will cure me. Staying positive =) and continuing to pray. My sister Trina is coming tomorrow. And the weather is supposed to be awesome so we're going to go for a walk and sit outside when she gets here. I'm excited to get outside and get some fresh air. And some exercise!! So, tomorrow will be a good day. I pray my counts are better than today!!
Wednesday, April 22, 2009
Bruises
I am so exhausted today. I had thought my counts were as low as they were going to get but my hemoglobin and platelets dropped again today. So, I am totally exhausted today. I've wanted to nap all day but it hasn't happened. Doctor said this morning that my counts should be on there way up now so we'll see how they are tomorrow. I got my Neupogen shot again last night. It was slightly sore afterwards but I didn't think anything of it. There was like a hard bump where I got it but I figured it was just from the medicine. About an hour went by, and I started getting a bruise. By the end of the night, the bruise was huge and awful and today it's even worse!! Here's a lovely picture of it.
Nice huh? I get the shot again tonight but it'll go in the other arm. I asked the nurse to please not make them matching lol. The nurse last night apologized and said she probably just hit a blood vessel. No biggy. I'm used to bruises with all this stuff. Here's one from an IV that got taken out.....not pretty, but it's starting to look better!
And, finally, here is a picture of my lovely piccline. They put it in after I'd been here for a couple of days. Yes, I have the port but it only has one line. With the new chemo's I was going to get, they needed to have seperate lines and rather than continually stick me, they decided to do the picc. Which is fine with me. No more pokes!! Not sure how long I'll have it but thats ok.
Yes, so now that I've learned how to post pictures, and with as bored as I get, this could get fun =) haha So, continuing to stay positive. I know there are lots of prayers going up for me as well Bri that she is my match. And I know she is. I have no doubt that I've gone through this relapse for her to cure me. We just have to wait.....and be patient which is very difficult for me!! But, God will get me through. My faith in Him has not wavered. I will continue to lean on Him and trust in Him. Thank you all for you prayers!! Keep em coming!!
Nice huh? I get the shot again tonight but it'll go in the other arm. I asked the nurse to please not make them matching lol. The nurse last night apologized and said she probably just hit a blood vessel. No biggy. I'm used to bruises with all this stuff. Here's one from an IV that got taken out.....not pretty, but it's starting to look better!
And, finally, here is a picture of my lovely piccline. They put it in after I'd been here for a couple of days. Yes, I have the port but it only has one line. With the new chemo's I was going to get, they needed to have seperate lines and rather than continually stick me, they decided to do the picc. Which is fine with me. No more pokes!! Not sure how long I'll have it but thats ok.
Yes, so now that I've learned how to post pictures, and with as bored as I get, this could get fun =) haha So, continuing to stay positive. I know there are lots of prayers going up for me as well Bri that she is my match. And I know she is. I have no doubt that I've gone through this relapse for her to cure me. We just have to wait.....and be patient which is very difficult for me!! But, God will get me through. My faith in Him has not wavered. I will continue to lean on Him and trust in Him. Thank you all for you prayers!! Keep em coming!!
Tuesday, April 21, 2009
Boring day
Today was a very long, boring day. But, the doctor said he'd rather I have boring days then exciting days. Boring days mean I'm doing good and on the upswing. If we had exciting days, then I could be sick or something. So, boring is good. Bri got tested today. And I am so positive that she is my match. God has made her my match and she is going to heal me. So-stay positive and keep praying everyone! We won't know for sure for about 2 weeks or more. It takes some time to get everything tested correctly. So, more waiting. My new room is actually pretty nice. Bigger than what I had and I actually have stuff to look at out my window =) But, other than that, my day has been internet, watching TV, and napping. Fun stuff. And more of the same tomorrow =) Keep praying. God is still working.
Monday, April 20, 2009
Room with a view
They have moved me to a different room. I was originally on the transplant unit because that was the only place there was a bed available. They had a transplant patient coming in either tonight or tomorrow morning and needed the room so they moved me up to the oncology floor, tenth floor;room 1037. Here is the change in my address:
James Cancer Hospital
Attn Leigha Wieman Room 1037
300 W. 10th Ave.
Columbus, OH 43210
It's nice up here. Nice everything except the TV. It kinda sucks. But oh well.....just a tv. I actually have a view up here on the tenth floor!! Kinda nice. And from this view I just saw the most beautiful double rainbow.....it was so bright. The funny thing is I had just been talking with my cousin Laurie about how we've been praying that Bri will be my match and suddenly she noticed the rainbow. (Kinda hard to see it from my cell phone pic, but it was beautiful!!) I believe it is a sign from God. Bri will be my match and He is going to cure me from this disease. We serve a truly awesome God and I know He will never leave nor forsake me.
Sunday, April 19, 2009
Good Sunday
Today was a pretty good Sunday. Well, mainly the afternoon was good with my visitors =) My friend Jason came and saw me. Then Bri, Keith and the kids came and saw me which was wonderful. It totally lifted my spirits to see those little boys. Logan's face lit up when he saw me. But he saw me hooked up to all my IV's and asked if I was sick and I saw no, just had some owie's lol. So cute. They were here for a couple of hours and left about 6:30ish I think. My mom showed up about 6ish and she's staying til tomorrow. The nurses here talked about moving me to the 10th floor. Right now, I'm on the transplant floor which I vaguely remember them telling me when I first got here that the room I was getting was temporary until another room came open. I just completely forgot about it since it's been almost 2 weeks. So, who knows. If they move me, I'll let you know!! So far, so good on counts. They're pretty low, which is good. The Neupogen hasn't done anything that I've seen so far. Doctor said this morning that he can't give me a timeline as to when the biopsy, transfer and all that jazz. In about 2 weeks or less, it sounds like I could go home for a bit, just not sure how long. Pray that I am in remission once they do the biopsy. That way, we can do the transplant ASAP. Otherwise, it'll be back to a clinical trial hardcore chemo course. But, I know I will be in remission. God is so great and is giving me a totally fresh start. Then we'll do the transplant, which I'll be here for 3-4 weeks. After that, I can leave the hospital but need to stay close to Columbus due to having to get checked almost every day. The hospital apparently can set me up with an apartment that my insurance would pay for but I don't want to do that. My friend Am said I could stay with her, which will be a huge help. Not sure how long I'll have to do that, but after that, I believe is home!! So, it sounds like pretty much my entire summer is going to be this. But, as long as it gives me a fresh start for the new school year, I'll be happy!!! And I know that is exactly what God is giving me. And I am so thankful and blessed for that!! Thank you for your continued prayers! Keep em coming cause God is working!!!! =)
Saturday, April 18, 2009
Pray
We need to pray and be positive that Bri is a marrow match for me. She is the most logical match as we share both a mother and a father. My insurance will pay for the test IF she is a match. If she's not a match, and her insurance doesn't cover it, then it's anywhere between $600-$900 bucks out of pocket for me. Then we have to go to the bone marrow database. So, I am being positive in saying SHE IS A MATCH. SHE IS GOING TO CURE ME. My insurance will cover the testing and the procedure and all will be well. =) On a side note, those of you that say you would be willing to get tested need to understand that you're insurance would have to cover it or you would have to cover the test out of pocket. I appreciate all the offers =)
I am so ready to get out of here. Moving apparently went well today. Not sure when I'll be there to see it and sort it and make it home but I was told everything got moved. It was kind've depressing not being there to help......being stuck here instead. I'm just getting very.......pissy I guess. Knowing I have to be here for almost 2 more weeks, then the biopsy and finally the transplant. I said in yesterday's blog it's 3-4 weeks in the hospital after the transplant, which is true, but then it's a couple weeks somewhere close here in Columbus because I'll have to come back to get checked a few times a week. My friend, Amber, said I could stay with her and her husband, which is wonderful. Thank you! =) She's been so great during this....coming to see me and keep me company as much as she can. Love ya Am!
Tomorrow, Bri is coming with the boys, which I can't wait!!!! I can't wait to see them and her. Those little guys cheer me up so quick and boy could I use it!! I just really need a good pick me up right about now. Being stuck here, with my thoughts, is not good lol. But, I am going to stay positive and trust in God because I know He is taking care of me and will provide for me!! I was supposed to be at prom tonight, chaperoning. I hope everyone had a safe and wonderful time. I can't wait to see pictures!
In regards to your comment about coming to see me Ang C-just shoot me a text =)
I am so ready to get out of here. Moving apparently went well today. Not sure when I'll be there to see it and sort it and make it home but I was told everything got moved. It was kind've depressing not being there to help......being stuck here instead. I'm just getting very.......pissy I guess. Knowing I have to be here for almost 2 more weeks, then the biopsy and finally the transplant. I said in yesterday's blog it's 3-4 weeks in the hospital after the transplant, which is true, but then it's a couple weeks somewhere close here in Columbus because I'll have to come back to get checked a few times a week. My friend, Amber, said I could stay with her and her husband, which is wonderful. Thank you! =) She's been so great during this....coming to see me and keep me company as much as she can. Love ya Am!
Tomorrow, Bri is coming with the boys, which I can't wait!!!! I can't wait to see them and her. Those little guys cheer me up so quick and boy could I use it!! I just really need a good pick me up right about now. Being stuck here, with my thoughts, is not good lol. But, I am going to stay positive and trust in God because I know He is taking care of me and will provide for me!! I was supposed to be at prom tonight, chaperoning. I hope everyone had a safe and wonderful time. I can't wait to see pictures!
In regards to your comment about coming to see me Ang C-just shoot me a text =)
Friday, April 17, 2009
Now we wait
Yesterday was my last chemo injection, which I'm very glad. God willing, it'll be the very last EVER!! Now, we wait for my counts to drop and I mean drop. They want them to bottom out completely, which my white blood count is only 0.4 right now. Very low. I have to wear a mask if I go out, just to be safe. The doctors are giving me a shot called Neupogen. It's supposed to help raise your counts. I'll be getting every day for a few days. I can't remember exactly how long they said I'd be getting it. It kinda hurt a bit getting it today. Stung is more like it. Definitely not something I'll look forward to getting every day but oh well. No biggy. Doctor said I'll be here for at least 2 weeks yet. So, come visit!!! Call me beforehand and let me know!! But, definitely come visit!! =) I like having company. Today, my friend Amber came to visit again (love her-she comes as much as she can=)We went outside and sat for like an hour. It was so awesome to get outside! I haven't been out in over 2 weeks. So, that was nice. My pastor came too, which was great. My brother, Dustin, came this afternoon with some movies for me. Anyways-lets go back quick to what the doctor said this morning. At least 2 weeks here, for counts to crash and come back up. Then, I'm not 100% sure what happens but I do know that once my counts are stable, we'll do a bone marrow biopsy to check for remission, which we know I will be in. After that comes the bone marrow transplant. After the transplant, I'll be here about 3-4 weeks, then I'll finally be able to go home. And home will be a completely different place then when I left, which is kinda weird. Tomorrow is moving day. My mom, dad and step-dad are all doing it for me, obviously since I can't be there =( They've got other helpers as well so it should all be done tomorrow. I sent a detailed list to my step-dad of what gets moved and where and what doesn't get moved. A lot of the stuff will go to their place so I can sort it later for a possible garage sale. So, I'll be coming home to a new home. I'll just have to move things and place them where I want them. Fun, fun. It'll be kinda nice to have a fresh start. I know that is what God giving me. =) And, I'd like to ask everyone to pray for my financial situation. I don't want to go into detail but with me not working at all this summer, I don't think I need too. I also know that God will provide. He always does. As I've said before, "Therefore I tell you, do not worry about your life, what you will eat or drink or about your body,what you will wear. Is not life more important than food, and the body more important than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Who of you by worrying can add a single hour to his life? Matthew 6:25-27
So, no worries!!
So, no worries!!
Thursday, April 16, 2009
Last day
Last day done..........again. It's kinda like Woo Hoo, considering I've been here before. But, I am praying that this is the last one and I'll be getting the transplant soon and be healed for GOOD!!!! Now that I'm done, I basically just sit here and wait. Wait for my counts to drop then come back up. The dr said they'll give me neupogen shots for the counts to stable out. Once thats done, we'll do a bone marrow biopsy, yes biopsy, to make sure we're there. Then, it's transplant time. We're still checking with insurance to make sure it's covered, so pray, pray, pray that it is!! Not only for me but for Bri or for whoever is compatatable with me. I can not wait until all this is over and I am HEALED!!!!!! It seems like its going to be a pretty long process but it'll all be worth it in the end. I may not make it back to school this year but at least I'll be 100% next year!!! I am just so ready to be cancer free for good!!! God has a plan and not even I know for sure what that is as of yet. But I trust in Him with all my heart and know everything will be ok. =) So, keep praying.
Wednesday, April 15, 2009
One more to go
Well, round 4 is completed meaning the final round is just around the corner!!! Tomorrow is the final day of treatment. And it's been a pretty rough round. Thankfully, I haven't felt sick at all. I only had one day of fever and that was the first day, PTL. After tomorrow, the doctor said they'll let my counts drop. I'll more likely get the Neupogen shot, which is supposed to help your counts. He said we'll let my counts drop for a week or two then I'll get the shot and be able to go home for a couple weeks, which I will love!! I hate missing......especially when I know I'll be missing things I was looking forward too. Like today, the senior choir members went to a dinner theater type thing. Guess who was supposed to and couldn't? And in 2 weeks, the band goes to compete at State contest and I'm not sure if I'll be out by then or not. That's something to definitely pray on and leave in God's hands. Whenever I do get out, I'll be out only for a couple of weeks. Once I come back, they'll do a bone marrow biopsy, yes biopsy, to be sure I'm in remission, which I know I will be with God's awesome graces. Once we're there, we'll do the transplant and I'll be healed =) I can not wait to be healed. And I know God has been healing me this entire time, as well as teaching me and guiding me along the way. As for my sister being a match, they should be sending her a packet to get tested. Right now, they're dealing with insurance to make sure all is covered. I pray she is a match for me. It would be such an awesome thing for her to match me and do the transplant with me. But, that is ultimately up to God. If she does not match, they'll go directly to the bone marrow database. So, pray for a match. I hate that I'm going through this again but I know God has a purpose and a plan. And I have no worries or fears as I know He will provide for me. So again, please continue your prayers. I know God is listening.
"Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord
Our God, You reign forever
Our hope, our Strong Deliverer
You are the everlasting God"
"Strength will rise as we wait upon the Lord
We will wait upon the Lord
We will wait upon the Lord
Our God, You reign forever
Our hope, our Strong Deliverer
You are the everlasting God"
Tuesday, April 14, 2009
Round 3= DONE
So, in about 2 hours, I'll be done with Round 3. I'm just sitting here watching TV and onmy laptop. And sweating to death. It is so hot in here. And, I'm completely exhausted so I keep half dozing off and and jerking when I wake up. I slept good last night until about 4 when I got up to go to the bathroom. The nurse saw me come out decided to do vitals. Note-I had warned the nurses that the one type would give me fevers and not to worry about it. Well, low and behold, my temp was 102. So, they had to do blood cultures from 3 diffefent places. By time that was done, it was 6ish and I was so ready to sleep!!! Went back to sleep until about 8, when the first doctor came in. I honestly can't remember what she talked to me about because I was so out of it but it must not have been bad (sorry mom!). She left, back to sleep. 10 came and Dr. Benson came (head doc basically) to see how I was doing. He said the cultures were just for safety's sake which I understand. He said if the fevers happen again, we'll just note it as a side affect. He said things are looking great. 3 more to go(well now 2). Once those are complete, we'll watch my counts, possibley get the Neupogen shot to help them lift. He said I should be able to go home before school's out, which was great news, but of course it was a "we'll have to wait and see" but I'm staying positive in knowing I will be. At least for a couple of days before I go back in for the transplant. So, for the most part, things are going well. I'm usually always pretty tired and could sleep all the time but that's how it is in hospitals. You can't seem to get a full nights sleep here.
Someone asked me how I was doing here and if it was hard not to question God in all of this. And honestly, it was very hard not to question God as to why He allowed for this cancer to return to me but then I recall Jeremiah 29:11-"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future". It's definitely been hard, knowing the cancer has come back....definitely tough to take at first. But, then I realizd that there must be a reason so I will continue to fight it until it is dead and gone. And God will be right here beside me, fighting all the way.
Someone asked me how I was doing here and if it was hard not to question God in all of this. And honestly, it was very hard not to question God as to why He allowed for this cancer to return to me but then I recall Jeremiah 29:11-"For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future". It's definitely been hard, knowing the cancer has come back....definitely tough to take at first. But, then I realizd that there must be a reason so I will continue to fight it until it is dead and gone. And God will be right here beside me, fighting all the way.
Monday, April 13, 2009
Round 2 = DONE
Another round complete and feeling ok. They added a 3rd drug to the regimine too. It will only be added for 3 days of the 5. Once the 5 days are over, I'll be getting the Neupogen shot which helps with the counts so they don't drop completely. Then, I'm assuming will be a bone marrow biopsy, which isn't fun but I know it's what needs to be done. Once the results come back that I'm in remission, we'll go to the transplant. The doctor told me today that I'll get to come home between remission and transplant. But, when it's time for the transplant, I'll come back and have to stay here for observation for 50-100 days. Crazy I know. He said it could be shorter (which I'm hoping for) depending on how things go so we'll see. At least it's at the beginning of the sumnmer so I can get it done, get healthy, and be back to school for cheer and band. I'm SO READY to be done with it all.....healed 100% by the wonderful grace of God. So, keep praying. I'm not done yet and I am going to continue to fight and fight and FIGHT!!!! With God by my side, all things are possible.
As for moving, my parents are going to try to get me moved this weekend, that way its done when I'm out. Things won't be where they're supposed to be (or where I want them to be more or less ;) but at least they'll be moved. So, we'll see. I know it will all work out in the end.
"I'm letting go, of the life I planned for me
and my dreams. Losing control of my destiny
Feels like I'm falling and that's what it's like to be believe
So I'm letting go"
As for moving, my parents are going to try to get me moved this weekend, that way its done when I'm out. Things won't be where they're supposed to be (or where I want them to be more or less ;) but at least they'll be moved. So, we'll see. I know it will all work out in the end.
"I'm letting go, of the life I planned for me
and my dreams. Losing control of my destiny
Feels like I'm falling and that's what it's like to be believe
So I'm letting go"
Sunday, April 12, 2009
Round one = DONE
Round one of chemo is DONE!! I received 2 differrent kinds. The first one I've never had before so we'll see how I respond to that. The second one I have had before but I believe this may be a differrent dose (stronger). It's the chemo that caused me to have such high fevers, so this should be interesting. I'm praying that I have no fevers at all and I know that with God workng, He will be sure that the fevers do NOT happen. The doctor said we'll do this 5 days in a row. Now sure what will take place after that but we will see. I'm just glad we got it started. One step closer to remission!!!!! Right now, I am in a lot of pain. My hips and legs are so sore, I could cry. But, I know God will heal me, He always has. Keeping the faith!!! As for visitors, there are only allowed 3 people per room at a time and no one under the age of 12 is allowed in. They would have to go to the family waiting room. Also, if you plan on visiting, please call me and give me a heads up with a time you will be arriving. This will make it easier to make sure I am ready and not in the middle of something. Thanks a bunch =) I look forward to the visitors!!
Thank you for your continued prayers. I know God is working and will continue to do so.
Thank you for your continued prayers. I know God is working and will continue to do so.
Friday, April 10, 2009
Quick update
Well, today wasn't too bad. The pain was slightly better than it has been the apast few. I have to admit that I woke up at 5 am to use the restroom and I almost couldn't walk there. My legs and hips were so sore and so stiff. But, I made it and made it through the day. I am almost constantly tired, which is normal for canser but a little rough for me. I'm sitting here trying to type and I can't seem to concentrate and all I want to do is close my eyes. But, funny thing is, I'll get off here and watch TV and be able to stay awake. Weird. My sister Trina and her husband and kids came and saw me today. Only when they got here, They were told the girls could not come in the room. No one under the age of 14. So they sat out in the family waiting room with Matt while Trina and I visited. I had to get an MRI done at 6:30 so they went to get something to eat while I got tested. After the test was over, I came back to my room and Trina was there shortly after. They brought me food =) Thank you again =) Then, Trina went to sit with the girls so Matt and I could visit. He prayed with me which made me feel better. I know I can do this...I can beat this again. I'm so ready to beat this and get out!! Keep praying. I know I am. God will make a way...when there seems to be no way. He works in ways, we can not see, He will make a way for me.
Thursday, April 9, 2009
One more thing
I thought I would post my address if anyone wanted it. It is :
James Cancer Hospital
Attn Leigha Wieman Room 358
300 W. 10th Ave.
Columbus, OH 43210
James Cancer Hospital
Attn Leigha Wieman Room 358
300 W. 10th Ave.
Columbus, OH 43210
James Rhoades Cancer Center
That's where I am. It's in Columbus. Not sure how to get here as I was in an ambulance but, it''s a nice hospital. They've done about a millon tests on me. They're trying to get my pain under control as I'm still having pain but my back, hips, and legs. My back isn't in to much pain, PTL, but my lower back, hips and legs are pretty sore. It's very hard to get up and walk around. I shake like a leaf. It's slowly getting better, PTL. I think they're going to start chemo tomorrow. Doctor said they're going to try to do a chemo that I've never had before so we'll see. This is just all so crazy. I thought I was done. DONE!! I'm so bummed that I've hit this speed bump. But, I know God will get me over it. I have no doubts about that. But, I have to admit I'm scared. Scared to get more chemo-I hate getting sick. Scared of the transplant, though I've heard it really isn't that bad. My sister is going to get tested to see if she is a match for me. If she's not, then we have to go to the database list and find a match. I know we'll find one. God is a healing God and He is healing me as we speak.
As you've probably figured it out, I was not allowed to go to NYC with the band and drama troupe. Very upset about this. But, I know my health comes first. I've just been looking forward to it since last year =( Oh well. There will be other trips.
I'm still not sure how long I'll be in here. Hopefully not long. School's almost out and I'd hate to be the hospital for the last few weeks of school. Especially since I was out the first few a weeks in the beginning. This is just crazy..........I'm at a loss for words. Please continue praying for me. I know God is working and is healing me.
As you've probably figured it out, I was not allowed to go to NYC with the band and drama troupe. Very upset about this. But, I know my health comes first. I've just been looking forward to it since last year =( Oh well. There will be other trips.
I'm still not sure how long I'll be in here. Hopefully not long. School's almost out and I'd hate to be the hospital for the last few weeks of school. Especially since I was out the first few a weeks in the beginning. This is just crazy..........I'm at a loss for words. Please continue praying for me. I know God is working and is healing me.
Wednesday, April 8, 2009
Keep praying
I apologize but I am to exhausted to blog. It would come out all weird and make no sense. So, instead, I'm going to go to sleep and wake up in the morning refreshed and fill everyone in on what is going on. God Bless and keep those prayers coming!!!!
Monday, April 6, 2009
Headed to Columbus
Well, tomorrow at 7am, I will be headed to columbus via ambulance to there clinic down there. From what I was told, I will probably be there 3-4 weeks. It sounds like they'll be doing extensive chemo to get me back in remission, then once I'm in remission, they'll do the bone marrow transplant. Crazy!! I'll have more details once I get there, this is just what my doc said but wow! Whatever it takes to get me healthy so I can start a fresh school year next year. Once I have an address and stuff, I'll post it so you all have it. Just keep me in your prayers! I have absolute faith in God right now with this and am not worried. I am scared a little but I know He is always right there beside me. So......the next time I blog, it'll be from good ole columbus..........wow.......time to get healthy!
Friday, April 3, 2009
I wish when something bad left, it would STAY GONE
Well, I'm home from my week long stay in the hospital. Wow, the week actually went fast. And despite all the pain, it really wasn't that bad...until today. The surgery went well. The surgery (called vertebroplasty) was kinda painful as I said before. I can't even describe to you how it felt......ugh. Anyways, they decided to take a biospy of the area just to be safe (as they weren't 100% sure as to why it had re-fractured anyways). I got through yesterday. Today was even better. Less pain daily, which I pray continues. The doctor came in around 2:00 to speak to me/send me home. I knew going to NYC was out of the question by the conversation's we had previously. I was very much bummed.....this was something I've been looking forward to since LAST school year!!!! But, it's ok. My health comes first. Anyways, they asked if I wanted to go home and of course I said yes. Then they said they had some bad news from the biopsy they took. The cancer is back. I was stunned. I just had a bone marrow biopsy done 2 weeks ago and the marrow looked great. So, this has come back in less than 2 weeks. I could not believe it. I didn't want to believe it. The doctors didn't want to believe it. Thankfully, it was Richard, my stepdad there with me. My mom would have freaked, causing me to freak. I cried.......asked how, why? This isn't fair....because it's not fair. They're not really sure how and of course no one knows why. So, I have an appointment with Leslie and Dr. Aggarwal on Monday morning to discuss everything and go over options. We can now look into possibly getting either a bone marrow and stem cell transplant. Hopefully, one of those is an option and it completely cures it. Otherwise, it's more treatment only rougher. I know I can get through this. It just sucks. I was so ready to be done. So ready to start fresh!! So excited about next school year already!!! But, we hit a speed bump. And, since it's only been 2 weeks, it's a very small speedbump that I KNOW God is going to get us over quickly!!!! So keep praying. Pray, pray, pray because I will not stop until this is gone for GOOD!! And it will be gone before summer. I promise you that and I promise myself that!!!! I am strong and powerful and my God is even more strong and powerful than I and I completely trust in him. Let's trust in him together.......
Thursday, April 2, 2009
So far, so good
Well, everything looks ok according the doctor. I'm stil not allowed to go home yet but they are hoping for tomorrow afternoon. I'm still not sure about weather or not NYC is still in the picture. I will be so bummed if I'm not able to go =( The doctor said he won't make a final decision until Saturday morning so we just have to keep praying!!! Whatever the answer, is God's answer and I will be ok with it whichever it may be. Well, it has been a crazy day so I'm signing off for now. Nap time
Wednesday, April 1, 2009
Successful but painful surgery
I was actually able to sleep last PTL! But today was slightly nerve wraacking and painful.They took me down for surgery about 8ish, I believe. They gave me somethign but, not sure what. I honestly don't rememeber much of what happened beause I was in so much pain. The next things I knew, they were like literally hammering nails or something in my back. WOW. PAIN!!! They did it 4 times,plus everything else they did. I was trying to stay calm and breathe but......yea. It was pretty rough. I have no idea exactly what they did but I will tell you that was the most painful thig EVER!!!! Beyond bone marrow. Doctor said it went well and should heal fine. So, keep praying. Thank you for your prayers during the surgery. This has definitely been a rough 2 weeks but I hope and pray it's over now!! We're supposed to leave for NYC on Sat night........I will he so sad if I can't go. I know my health is first....but please pray I can go. Well, I am whooped so I am going back to my bed, watch AI and go to sleep. Keep Praying!! God is always working!!!
BTW-Pastor Dave-thank you for stopping up today!! I greatly appreciate it!!
BTW-Pastor Dave-thank you for stopping up today!! I greatly appreciate it!!
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